Eurordis Community Advisory Board meeting – October 2018
Anne Marie O’Dowd and Denise Dunne travelled to Barcelona on 16th …
We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood.
Our overhead costs are separately sponsored and therefore all money raised through fundraising goes directly to research.
Most research into cystinosis is funded by patient groups like Cystinosis Ireland.
We've funded research into cystinosis to the value of almost €2million in Ireland and worldwide.
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