Raptor Pharmaceuticals announce results of Phase 2a Trial of DR (Delayed-Release) Cysteamine.  Please go to our NEWS PAGE for more details
patients and family - find out more
Cystinosis Foundation Ireland currently support five research projects:

Dr. Patrick Harrison and his team in University College Cork

Dr. Philip Newsholme and his group in University College Dublin - 2 Projects

Professor Don Cairns' group at Robert Gordon University, Aberdeen

Dr. Poonam Sansanwal at the Sarwal Lab, Stanford University, California
research - find out more
Have a look at our latest newsletter - Review of 2009
medical, media - find out more
The AIB Better Ireland Programme supports non-profit organisations / groups working with children under 18 years of age, addressing social exclusion, ill health, disabilities and addiction within with the aim of enhancing the lives of these children.

We have learned that we have been shortlisted for one of these monetary awards.  Voting for the winners is a public text and online vote from 15th February to 15th March 2010.  We would love your support, full details of how you can do this will appear here shortly.
fundraising and donations - find out more


latest news

Feb 08, 2010

Voting Details for AIB Award
Voting lines open on 15th FEBRUARY for our chance to win in the AIB Better Ireland award Find out more

Feb 05, 2010

Stephen's Big Shave!
A new fundraiser for Cystinosis Foundation Ireland Find out more

Jan 14, 2010

Cystinosis Foundation Ireland shortlisted for award
The AIB Better Ireland Fund informed us this week that we are in the shortlist for a monetary award Find out more

Jan 11, 2010

Exciting News from Raptor Pharmaceuticals
Raptor Pharmaceuticals published the results of their Phase 2a Trial of DR (Delayed-Release) Cysteamine for the treatment of Cystinosis Find out more