27th June 2016:

Well done Wes and all the Boys in Green at the Euros. Also well done to Northern Ireland who also progressed to the final 16.



We have made a short information film about Life with Cystinosis. Thank you so much to Darren Frehill for his generosity in making and producing this film for us.


View film here



Raptor Pharmaceuticals have produced a Whiteboard animation which explains cystinosis, and all the symptoms and effects very clearly and in simple language. Take a look:

http://vimeo.com
/100519074


patients and family - find out more














The call for applications for the MRCG/HRB Research Call 2016 is now closed.

Thank you for the interest and we are very excited to have received several projects for consideration.  

However, Cystinosis Ireland is interested in hearing from researchers with new projects and ideas at any time. Please contact us at research@cystinosis.ie



October 2015:


Introducing....Dr. Jennifer Hollywood, one of our current researchers


Details of the two projects we are currently funding are available here.



research - find out more
27 June 2016:

Cystinosis Ireland Events Calendar launched. Take a look



May 2016:

At the end of 2014 Kidney Disease: Improving Global Outcomes (KDIGO) convened a Controversies Conference on cystinosis. 49 experts from around the world met and the June issue of "Kidney International" has published their conclusions.

https://cystinosis.org/images/research/article-library/overview/KDIGO-Cystinosis-Conf-Report-Final.pdf



4th April 2016:

We had a most successful weekend in Ashbourne 1-2 April where we held our first Family workshop alongside the second Scientific workshop.

Thank you so much to Darren Frehill who came along, observed, filmed and interviewed some of us. Take a look

medical, media - find out more
Two Golf Classics coming up in aid of Cystinosis research: 

Kilcock Golf Club on 13th August and Ashbourne Golf Club on 26th August.

If you are interested in taking part in either of these please contact us at fundraising@cystinosis.ie for more details.





And remember you can donate €4 by texting the word MINI to 50300

100% of your donation goes to Cystinosis Ireland across most network operators. Some operators apply VAT which means that a minimum of €3.25 goes to Cystinosis Ireland. Service Providers LIKECHARITY. Helpline 0766805278.


fundraising and donations - find out more


latest news

Jun 27, 2016

CYSTINOSIS IRELAND EVENTS CALENDAR LAUNCHED
Details of all forthcoming events of interest to all of our friends and donors are now available: Find out more

May 19, 2016

Kidney International - June issue
KDIGO Conference - outcomes published Find out more

Feb 26, 2016

VHI Women's Mini Marathon 2016
Register now at www.vhiwomensminimarathon.ie to secure your place in the biggest road race of the year Find out more

Jan 29, 2016

Family Workshop
All families are invited to attend an informal but informative get together 31st March - 2nd April. Find out more