19 October 2016: Cystinosis Ireland has received 15 copies of the ‘Super Cysteamine Team’ comic book by Kevin McCalla and the Cystinosis Research Network. Please contact us if you wish to receive a copy!
27 June 2016:
Cystinosis Ireland Events Calendar launched. Take a look
At the end of 2014 Kidney Disease: Improving Global Outcomes (KDIGO) convened a Controversies Conference on cystinosis. 49 experts from around the world met and the June issue of "Kidney International" has published their conclusions.
Click Here For KDIGO Report
4th April 2016:
We had a most successful weekend in Ashbourne 1-2 April where we held our first Family workshop alongside the second Scientific workshop.
Thank you so much to Darren Frehill who came along, observed, filmed and interviewed some of us. Take a look