Rare Disease Briefing at Leinster House
We were delighted to be the guests of Ruth Coppinger TD on Tuesday 25th September …
We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood.
Our overhead costs are separately sponsored and therefore all money raised through fundraising goes directly to research.
Most research into cystinosis is funded by patient groups like Cystinosis Ireland.
We've funded research into cystinosis to the value of almost €2million in Ireland and worldwide.
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Text MINI to 50300 to donate €4
Text MINI - 100% of your donation goes to Cystinosis Ireland across most network operators. Some operators apply VAT which means that a minimum of €3.25 goes to Cystinosis Ireland. Service Providers LIKECHARITY. Helpline 0766805278