We asked Dr. Patrick Harrison to write an research update for our Golf Day held in June.  Using a golf analogy he wrote a very encouraging piece.  

Please read on 



patients and family - find out more
Dr. Patrick Harrison, U.C.C. recently received notification that Cystinosis Research Foundation, Irvine, California, www.natalieswish.org, have awarded Ciaran Lee a two year fellowship for the study "Cystinosis Gene Repair".  The study will commence 1st October 2010, ending 30th September 2012.  The total amount of the grant award is $146,258.

More details
research - find out more

Congratulations to JAMES HANNON, Co. Longford, who won a Silver medal in the European Transplant & Dialysis Games held this week in Dublin.  James won his medal for the Petanque Mens Doubles - 18 -39.  Final Medals table here:  http://2010newlife.com/2010/08/medals-table/

More Information:
http://2010newlife.com/


  "Cystinosis Ireland"

medical, media - find out more
A date for your diaries: 

Saturday 16th October:  Shelbourne Park Greyhound Night in aid of Cystinosis Foundation Ireland
fundraising and donations - find out more


latest news

Aug 26, 2010

Dublin Airport Taxi Drivers get moving for Cystinosis
A Fundraising evening held 25th August and hosted by Dublin Airport taxi drivers was a great success Find out more

Aug 14, 2010

Hannon wins Medal!
James Hannon won a silver medal in the European Transplant & Dialysis Games Find out more

Aug 01, 2010

Great Day and Evening in Preston
The Fifth Fundraiser held in Hertfordshire in aid of Cystinosis research was another great success. Find out more

Jul 12, 2010

We launch our Facebook Page
Please join our Facebook page, we would love to hear your ideas and comments. You can find us at facebook.com/cystinosis.ireland Find out more