Fundraising & Donations

Latest News

Dublin Airport Taxi Drivers get moving for Cystinosis

A Fundraising evening held 25th August and hosted by Dublin Airport taxi drivers was a great success Find out more...

Hannon wins Medal!

James Hannon won a silver medal in the European Transplant & Dialysis Games Find out more...

Great Day and Evening in Preston

The Fifth Fundraiser held in Hertfordshire in aid of Cystinosis research was another great success. Find out more...

We launch our Facebook Page

Please join our Facebook page, we would love to hear your ideas and comments. You can find us at facebook.com/cystinosis.ireland Find out more...



We very much appreciate everyone's support.  Should you wish to donate online you may make a Credit Card donation here


We have also been asked by a number of people if they can make regular donations to Cystinosis Foundation Ireland. If you would like to do this please print off the following mandate form, fill in your details and forward to your bank. We would ask you to email us at mail@cystinosis.ie when you have done this to enable our Treasurer keep track of payments coming into the account.

Print off Standing Order Mandate
 

You can also make a donation via the mycharity.ie web site:    

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LONDON DAY


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Our Seventh Annual Golf Classic took place at Grange Golf Club, Rathfarnham on Friday 4th June 2010.

  Read more here  & Photos











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Deep River Rock Belfast City Marathon 2010


The family and friends of Jack McCauley took part in this year's Belfast City Marathon on Monday 3rd May 2010 to raise funds for Cystinosis research.  Fifteen of them took part in relays - and fifteen members, Teams Cystinosis A, Cystinosis B and Cystinosis C all finished.  Their official time was 5 hours 34 minutes.  Well done everyone. 

Not only did they have the satisfaction of the personal achievement of completing a Marathon, they also raised the amazing sum of €3,220

Very special thanks to the team members:

Adrian Hughes, Nicola Hughes, Leigh Keyes, Roger King, Gillian McCauley, William McCauley, William McCauley Snr., Amanda McDonald, Chris McDonald, Natasha McDonald, Mark Parr, Andrea Trainor, Catherine Trainor, Conor Trainor, Liam Trainor, Samantha Waite

Some photos of the day here


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THE SHAVE finally took place on 1st April, also at Shelbourne Park.                            

                       

Stephen braved the blade during our Night Out at Shelbourne Park.  He was brave enough to let his wife, Carole shave him.  However, the nerves were starting to kick in by the time she produced the cut-throat razor so a certain amount of Dutch Courage was needed before she could start.

It as all worth it though, he raised the amazing amount of €1,966 - coincidentally 1966 was the year he was born - and the last
year he did not have a moustache!   He asked us to pass on his thanks to all who sponsored him, and a special thanks to Susan Wilkes for all her effort on his behalf.     

Update:  Stephen has received another donation of €50, so his grand total stands at €2,016 - a staggering amount.               

More photos here

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We had another great night at Shelbourne Park, 1st April which raised over €4,300.  Thank you everyone who came along and also those who could not attend but bought Dogs

 

Take a look!  
         


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This year's Womens Mini Marathon took place on Bank Holiday Monday, 7th June 2010.

We are hugely grateful to all those ladies who braved the very unseasonal downpours on our behalf - thank you so much to:  Helen Besant, Lisa Brady, Helen Casey, Denise Curley, Anne Gale, Colette Gleeson, Tina Keogh, Katherine Lucey, Leanne Mullen, Fiona MacCormaic, Lesley MacCormaic, Rita McAnaspie, Audrey Nolan, Teresa Nolan, Phil Maloney, Ellen Stapleton, Sandra Stapleton

                      
 Some of our group after they dried off!                      Ellen & Sandra designed their
                                                                                     own t-shirts for the day

 

 

 

 

 

 

PLEASE THINK OF US NEXT YEAR IF YOU ARE TAKING PART IN THE MINI MARATHON 

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4th July 2009 saw the culmination of our most challenging fundraiser yet.   Seven weary men arrived at the Red Lion, Preston after walking 100 miles in three days.  They had been joined on the last day by three more weary travellers who stepped out the last 33 miles with them.  

Read Gary Pemberton's own account of the three day torture!

More Pictures of this great achievement





On the same day the waters of the Salthill prom were getting pounded in aid of Cystinosis too.

Read Ann's Story here







L-R: Unknown swimmer, Shannon Ortiz-Lynch, Ann 
       Brehony

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DISCO DIVAS of all ages enjoyed our First Ladies Night on
23rd October 2009.

 

 

We would like to thank the following sponsors for their generous support of our first Ladies Night:  

Beads & Bling, Temple Bar * Bewley's Hotel, Ballsbridge *  Butlers Chocolates, Dublin 17  *  Cineworld Cinemas, Dublin 1  *  Fitzgerald's Woodlands House Hotel, Adare  *  Handmade Christmas Cards, Linda Gray  *  Henparty.ie  *  HouseandHome.ie  *  J.F.H. International Ltd., Glasnevin  *  ProDJ's.ie  *  Revas Spa & Hair Gallery, Adare  *  Sister Sister Accessories  *