PLEASE take the time to register with the C.C.I.R. if you have not already done so.  We are delighted that as at end of December 2011 there are 301 patients from 31 countries registered! The registry is sited in many research proposals and studies.   HOWEVER, there are still many people who are not registered - do it today!

The Ask an Expert section is one of the most successful features. In fact recently all of the questions and answers that have been asked have been compiled and posted on the CCIR site under the FAQ tab. Please take a minute to go on the site and read the questions and answers.



 

patients and family - find out more
2012 M.R.C.G./H.R.B. Joint Funding Scheme is now CLOSED for applications. 


Cystinosis Foundation Ireland are proud and delighted to announce that we have now funded €1 MILLION worth of research since our inception in 2003!

















research - find out more

We currently fund research at University College Dublin.  A copy of the UCD School of Biomolecular and Biomedical Science December 2011 Newsletter can be accessed here.  The Cystinosis Research Symposium in UCD is featured on page 3

medical, media - find out more
Happy New Year to everyone, let's hope 2012 is a great one for us all!  As part of your new year get fit routine why not train for the Flora Women's Mini Marathon which takes place on Monday 4th June (Bank Holiday).  We would love to have you on our team.

Contact us at
mail@cystinosis.ie if you are interested.

And thank you all once again for your amazing support in 2011 which saw us raise over €100,000.  Here's hoping we can do it again in 2012!
fundraising and donations - find out more


latest news

Jan 25, 2012

Save the Date
Cystinosis Research Foundation hold their 2012 Natalie's Wish celebration, Saturday 21st April 2012 at the Balboa Bay Club & Resort, Newport Beach, California Find out more

Jan 20, 2012

HRB/MRCG JOINT FUNDING SCHEME
Closing date Find out more

Jan 16, 2012

MRCG/HRB Deadline approaches
Friday 20th January is the deadline date for receipt of submissions Find out more

Dec 22, 2011

THANK YOU EVERYONE!
€100,000 fundraising total reached in 2011! Find out more