Latest News

2016 Audited Accounts finalised

You can view our 2016 audited Accounts on our "Who Are We" page Find out more...

Thank you!

To the Tea + Toast Theatre Company for donating tonight's performance of "Fizzy Drinks with two Straws" to us for cystinosis research. Find out more...

VHI Women's Mini Marathon 2017

Calling all the ladies out there! Find out more...

First Seedcorn Funding Programme Launched.

In collaboration with the Cystinosis Research Network and the Cystinosis Foundation UK Find out more...
AIRG France

Australia Support Group

Brazil Cystinosis Support

Cystinosis Research Network 

    - CRN's Message Forum:
      CRNSupport Group

Cystinosis Foundation, Inc (USA)

Cystinosis Foundation UK

Cystinosis Chapter India

Cystinose-Selbsthilfe Deutschland

Cystinosis Research Foundation

Italian Cystinosis Association 

Cystinosis South Africa

Other Useful Links

Irish Kidney Association We hope you find these IKA screens informative, interesting and stimulating. They cover a wide range of kidney-related topics - from the Association's structure and objectives through to renal recipes and publications...

Diabetes Federation of Ireland Our Mission is to provide a quality service to improve the lives of people affected by diabetes and work with others to prevent and cure diabetes.

Mack Maxwell's Workout An exercise programme designed by an adult with Cystinosis to improve quality of life for patients suffering from muscle wasting difficulties...

Barretstown - a Serious Fun Camp   Barretstown is a specially designed camp that provides therapeutic recreation programmes for children with serious illnesses and their families.

Make-A-Wish Ireland has one simple aim - to grant the wishes to children aged 3-17 who live with a life-threatening medical condition.