Look back at our activities through these Newsletters from recent years:
Media Publications
This article appeared in the Irish Times on 17th March 2009. Treating her son like a normal eight-year-old boy despite his rare genetic disease is part of her job as a parent, says Anne Marie O’Dowd. "We're in this for life"is her story as told to FIONA TYRRELL, of the Irish Times
: http://www.irishtimes.com/newspaper/health/2009/0317/1224242941746.html
An article discussing our project at University College Cork appeared on 26th June 2008 in The Irish Times
Sinéad & Ciara Maguire - "2 in a Million", Daily Star (PDF)
Two US scientists and their UK collaborator were awarded the Nobel Prize for medicine in 2007 for their groundbreaking work in gene technology. Their work plays a big part in our research project in Stanford University - Nobel Prize Article (PDF)
Kenny Murdock is our "Cystinosis Duck" - Can you spot him in this article (PDF)
Luke Hennelly "Calling for our Help" - Daily Star 14th June 2003 (PDF)
"Help us save Luke's life" - Sunday World 17th August 2003 (PDF)
Darren Barnes is featured in "No treatment for a rare disease" - The Star 8th November 2003 (PDF)
Stephen Rea and Cystinosis Foundation launch Women's Mini Marathon 2008 campaign - Read More