Terms & Conditions

Latest News

2016 Audited Accounts finalised

You can view our 2016 audited Accounts on our "Who Are We" page Find out more...

Thank you!

To the Tea + Toast Theatre Company for donating tonight's performance of "Fizzy Drinks with two Straws" to us for cystinosis research. Find out more...

VHI Women's Mini Marathon 2017

Calling all the ladies out there! Find out more...

First Seedcorn Funding Programme Launched.

In collaboration with the Cystinosis Research Network and the Cystinosis Foundation UK Find out more...

Your access to and use of our website is subject to the following terms and conditions:

  1. By using our website you are accepting these terms and conditions, if you do not wish to accept these, please discontinue use of our website;
  2. While we are dedicated to providing support to those affected by cystinosis, we cannot give any medical advice and we ask that you seek professional medical advice for diagnosing and treating any condition;
  3. All information and opinions that we publish on our website, or that is published by a third party and distributed by us through our website, is for general information purposes only and is not intended to and shall not constitute advice on the diagnosis or treatment of any condition.
  4. We cannot guarantee that the information and materials contained on our website are error free and we cannot take any responsibility for the content of materials referred to on our website. While we have taken reasonable care to ensure that the sources of all information are reliable, we cannot guarantee the accuracy or completeness of such information.
  5. The existence of a link from our website to another organisation does not constitute our endorsement of that organisation and we cannot take any responsibility for the content or security of external Internet websites.
  6. We cannot guarantee that our website, or the server on which it is hosted, is free of viruses or bugs.
  7. All of the content of our website is copyright of the Cystinosis Foundation Ireland, except where stated otherwise and except for the content submitted by third parties who have given permission for their materials to be used.
  8. While the content of our website may be copied for personal, non-commercial use, on the condition that the copyright and source indicated are also copied and that no modifications are made, commercial use or publication of any of the content of our website is strictly prohibited without our prior written consent.
  9. If you submit any material to us (including any text, photographs, graphics, video or audio) through our website or by email, you agree to grant Cystinosis Foundation Ireland a perpetual, royalty-free, non-exclusive, sub-licenseable right and license to use, reproduce, modify, adapt, publish, translate, create derivative works from, distribute, perform, play, make available to the public, and exercise all copyright and publicity rights with respect to your contribution worldwide and/or to incorporate your contribution in other works in any media now known or later developed for the full term of any rights that may exist in your contribution. By submitting your contribution to us, you warrant that your contribution is not defamatory and that you have the right to make it available to us for all the purposes specified above.
  10. You agree to use our website for lawful purposes only and in a manner that does not infringe the rights of other third parties.
  11. We may change these terms and conditions at any time by posting changes on-line. By continuing to use our website after the terms are changed, you will be accepting the applicable terms and conditions.
  12. The laws of Ireland govern these terms and conditions and any disputes are subject to the exclusive jurisdiction of the courts of Ireland.