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Learn more about Cystinosis

Research. Awareness. Support

Dedicated to supporting families and funding research.
One day we’ll find a cure.

Donate now

Family Support

We provide support and resources to families with cystinosis, from the early stages of diagnosis through to adulthood.

Funding & Awareness

Our overhead costs are separately sponsored and therefore all money raised through fundraising goes directly to research.

Research

Most research into cystinosis is funded by patient groups like Cystinosis Ireland.

Delivering HOPE through success

We've funded research into cystinosis to the value of almost €2million in Ireland and worldwide.

Supporting 21 Patients in Ireland

€2 Million toward cystinosis research

We work with...

Hope will find a cure

Text MINI to 50300 to donate €4

Text MINI - 100% of your donation goes to Cystinosis Ireland across most network operators. Some operators apply VAT which means that a minimum of €3.25 goes to Cystinosis Ireland. Service Providers LIKECHARITY. Helpline 0766805278