Donate 5th Annual Dublin Cystinosis Workshop 2019 - 26 & 27 April 2019

Our Blog

March 7th, 2018

International Cystinosis Conference, 13-15 July 2018

Berlin hosts the bi-annual International Cystinosis Conference this summer.  The theme of this year’s event is …
October 10th, 2017

Multiplatinum Soul Singer Joss Stone Visits Cystinosis Ireland!

English singer, songwriter and charity advocate Joss Stone came to visit Cystinosis Ireland!

She is …
October 6th, 2017

Power Couple of the Year!

Congratulations on your wedding, Rachael and Dylan Power!
They’ve run marathons, been though hell and back …
October 1st, 2017

Kilcock Golf Classic 2017

Hope for Hagan! Swing for a Cure!
The second Kilcock Golf Classic, organised by our friend …
September 26th, 2017

Church Gate Collection

Thank you so much to Sean, Bernie, Robert, Lydia, Phil, Eddie and Maura who organised and …
September 11th, 2017

#BBQ4Cystinosis an international success!

From Vancouver to Brisbane and (almost) everywhere in between…
This past weekend, hosts from all over …
September 10th, 2017

Gary, Chris and Richard take it to the Thames!

Not all heroes wear capes… some of them wear a good pair of walking shoes!
Our …
August 25th, 2017

Ashbourne Golf Classic 2017

Annual ‘Tee Off for Life’ a great success!
Once again, our annual Cystinosis Ireland – Ashbourne …
August 14th, 2017

Rock ‘n’ Roll 1/2 Marathon with Rachael & Dylan!

Rock, Roll and Run!
Rachael and Dylan are long-time Cystinosis Ireland volunteers, supporters, and family. They’ve …
August 4th, 2017

Second Cystinosis colouring book launched!

‘Crossing the Deep, Dark Sea: A Cystinosis Voyage’
Coming to a mail box near you – …