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Our Blog

September 11th, 2017

#BBQ4Cystinosis an international success!

From Vancouver to Brisbane and (almost) everywhere in between…
This past weekend, hosts from all over …
September 10th, 2017

Gary, Chris and Richard take it to the Thames!

Not all heroes wear capes… some of them wear a good pair of walking shoes!
Our …
August 25th, 2017

Ashbourne Golf Classic 2017

Annual ‘Tee Off for Life’ a great success!
Once again, our annual Cystinosis Ireland – Ashbourne …
August 14th, 2017

Rock ‘n’ Roll 1/2 Marathon with Rachael & Dylan!

Rock, Roll and Run!
Rachael and Dylan are long-time Cystinosis Ireland volunteers, supporters, and family. They’ve …
August 4th, 2017

Second Cystinosis colouring book launched!

‘Crossing the Deep, Dark Sea: A Cystinosis Voyage’
Coming to a mail box near you – …
August 4th, 2017

Congratulations, Martina and Damien!

Congratulations to Martina and Damien, who were married today, August 4th!
Martina and Damien very kindly …
August 3rd, 2017

International Barbecue for Cystinosis – September 9th/10th 2017

Cystinosis Ireland is proud to announce our first ever International Barbecue!
We are calling for pit …
August 1st, 2017

Ashbourne Golf ’17 due to be a great event!

‘Tee Off for Life!’
We are hoping for another great day of golf and good weather …
July 25th, 2017

Tea Party Spectacular

Thank you so much to Louise and Alan Harkeness and all of their family and friends …
June 24th, 2017

Craft Fair Fundraiser at CFC

A big thank you to our friends Lilly Gallagher and Leann Stanex for all of their …