Donate 5th Annual Dublin Cystinosis Workshop 2019 - 26 & 27 April 2019

Our Blog

September 28th, 2018

Rare Disease Briefing at Leinster House

We were delighted to be the guests of Ruth Coppinger TD on Tuesday 25th September …
July 27th, 2018

Cystinosis Ireland funded research in New Zealand

New treatments for kidney diseases and inherited kidney disorders could result from new research that is …
July 13th, 2018

European Cystinosis Conference – Berlin

Cystinosis Ireland is delighted to join our colleagues and friends from across Europe at the European …
June 29th, 2018

4th Dublin Cystinosis Workshop 2018

This year, Cystinosis Ireland was delighted to welcome 22 scientists from New Zealand, USA, …
March 7th, 2018

International Cystinosis Conference, 13-15 July 2018

Berlin hosts the bi-annual International Cystinosis Conference this summer.  The theme of this year’s event is …
October 10th, 2017

Multiplatinum Soul Singer Joss Stone Visits Cystinosis Ireland!

English singer, songwriter and charity advocate Joss Stone came to visit Cystinosis Ireland!

She is …
October 1st, 2017

Kilcock Golf Classic 2017

Hope for Hagan! Swing for a Cure!
The second Kilcock Golf Classic, organised by our friend …
September 11th, 2017

#BBQ4Cystinosis an international success!

From Vancouver to Brisbane and (almost) everywhere in between…
This past weekend, hosts from all over …
September 10th, 2017

Gary, Chris and Richard take it to the Thames!

Not all heroes wear capes… some of them wear a good pair of walking shoes!
Our …
August 25th, 2017

Ashbourne Golf Classic 2017

Annual ‘Tee Off for Life’ a great success!
Once again, our annual Cystinosis Ireland – Ashbourne …