The Cystinosis Research Seedcorn Funding Programme 2019 aims to provide researchers with the opportunity to generate solid preliminary data which would contribute to a sustainable, longer-term application for funding.

Funding is available to research institutions worldwide.

Researchers new to the field of cystinosis research are welcomed.

Research can be in any area of cystinosis. But, areas of interest currently for families of those with cystinosis are bone issues; muscle problems; vomiting in young children; use of ‘blended’ diet; combating halitosis and the smell of cysteamine treatment and healthcare transition models.

We are open to high-risk, ‘blue sky’ applications and will consider these favourably where applicants highlight this in their application.

We operate a rigorous peer review process.

MAXIMUM FUNDING AVAILABLE: €10,000 per project (more in exceptional circumstances)


CLOSING DATE FOR APPLICATIONS IN 2019: 2 August 2019 and 1 November 2019

Researchers interested in this funding scheme should email for more information or to discuss a potential research proposal. 

You can download our Cystinosis Research Seedcorn Application Form here