The Directors, Board members and all the families at Cystinosis Ireland were deeply saddened to learn of the recent passing of Jonathan Terry, MBE, founder of the Cystinosis Foundation U.K.

Jonathan was very active in the cystinosis world and was involved in organising events and conferences to help educate families and the medical community about cystinosis.

Jonathan was a great friend to all of the Irish families who reached out to him for advice; he was always open and honest, as well as sensitive and caring when dealing with them at their most vulnerable times.

Jonathan always remained cheerful and you always came away from a conversation with him with a smile on your face. He was one of life’s true gentlemen. May he rest in peace.