In very exciting news for the cystinosis community, our friends at CFUK have announced that "researchers at the University of Sunderland have received £3.9 million from the Medical Research Council (MRC) to take a promising new treatment, CF10, into clinical trials.

"This milestone is the result of years of tireless work by the late Professor Roz Anderson, an inspirational medicinal chemist whose vision and dedication laid the foundation for CF10—a novel prodrug designed to improve the lives of those living with cystinosis. Roz’s pioneering research, supported early on by Cystinosis Foundation UK’s community fundraising efforts, aimed to reduce the harsh side effects of the current treatment, cysteamine, and offer a more tolerable, effective alternative."

You can find more details on the CFUK website and the Sunderland University website.

We are looking forward to an update from Prof Herbie Newell, who now leads this exciting research, at the CNE International Conference to be hosted by Cystinosis Ireland in Dublin in July 2026. If you haven't registered for the conference yet, you can do so at https://www.cystinosis-europe.eu/our-conference.