Donate Dublin Cystinosis Workshop

Research

HRB/MRCG Join Funding Scheme

Cystinosis Ireland had been very successful to date attracting government funding through the HRB/MRCG Joint Funding Scheme. This scheme allows charities like Cystinosis Ireland to make an even greater impact with donations we receive.

The next JFC Call is anticipated to take place in Q4 of 2017.

Researchers, please email your contact details to research@cystinosis.ie to be kept up to date with research and funding announcements.

Cystinosis Ireland is open to receiving applications in all areas of cystinosis research. However there are areas of particular interest to us:

·         Orthopaedic problems and muscle wasting in cystinosis
·         Ocular issues in cystinosis and its treatment
·         Effects of cystinosis medications and treatments on patients
·         Effects and safety of pregnancy in cystinosis patients
·         Fertility issues in cystinosis patients – male and female
·         Quality of Life issues including education, well-being, employment, transition to adult care for children,                   effects of living with someone with cystinosis on the family
         Adults with cystinosis
·         Stem cell research/Gene Therapy in cystinosis
·         Issues related to renal transplant for cystinosis patients
·         Finding better treatments for cystinosis
·         Finding a cure for cystinosis.
For more information please contact us at research@cystinosis.ie or phone Anne Marie on 086 3412571

 

Hope will find a cure

Text MINI to 50300 to donate €4

Text MINI - 100% of your donation goes to Cystinosis Ireland across most network operators. Some operators apply VAT which means that a minimum of €3.25 goes to Cystinosis Ireland. Service Providers LIKECHARITY. Helpline 0766805278