Donate 5th Annual Dublin Cystinosis Workshop 2019 - 26 & 27 April 2019


Seedcorn Funding

Cystinosis Ireland is delighted to be a Seedcorn Funding partner with our colleagues in Cystinosis Foundation UK and Cystinosis Research Network.  Further details of the fund can be found here, or email us at


Cystinosis Ireland launch of 2018 HRB/MRCG Joint Funding Scheme for cystinosis research projects

To date Cystinosis Ireland has funded research to the value of €1.9 million in Ireland and internationally. Part of this success is due to the MRCG/HRB Joint Funding Scheme. Cystinosis Ireland has been very successful attracting government funding through this initiative. This scheme allows charities like Cystinosis Ireland to make an even greater impact with donations we receive. The 2018 Joint Funding Scheme call is now open.  We are delighted to invite applications for this scheme from researchers in Ireland and worldwide.

Opening date for call: 6th November 2017.

Closing date for receipt of completed applications:  18th December 2017.

(Please email with an expression of interest with area of research).

Projects of durations of up to three years accepted and to a maximum of €100,000 per annum.  Shorter project durations and lower funding amount applications also accepted.  Proposals funded in this call are expected to commence in September 2018.

Full details with accompanying forms are below.  Please read carefully as the application process is strict.  Areas of researchinterest to Cystinosis Ireland below.

MRCG-HRB Instructions to Applicants 2018 FINAL
MRCG-HRB Part B1 Application Form
MRCG-HRB Part D2 PI Host Institution Signature Page
MRCG-HRB Part D1 PI Signature PageMRCG-HRB Part C3 Warrant for International Host Institutions
MRCG-HRB Part C2 Infrastructure Agreement
MRCG-HRB Part C1 Collaboration Agreement


Cystinosis Ireland is open to receiving applications in all areas of cystinosis research. However there are areas of particular interest to us:

  • Orthopaedic problems and muscle wasting in cystinosis
  • Ocular issues in cystinosis and its treatment
  • Effects of cystinosis medications and treatments on patients
  • Effects and safety of pregnancy in cystinosis patients
  • Fertility issues in cystinosis patients – male and female
  • Quality of Life issues including education, well-being, employment, transition to adult care for children, effects of living with someone with cystinosis on the family, adults with cystinosis
  • Stem cell research/gene therapy in cystinosis
  • Issues related to renal transplant for cystinosis patients
  • Finding better treatments for cystinosis
  • Finding a cure for cystinosis

For more information please contact us at

Hope will find a cure

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